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Voices of MPN
Приєднався 21 сер 2013
Voices of MPN offers an opportunity to raise your voice and make a difference in the care and support of people living with MPNs.
Incyte Corporation owns the Voices of MPN trademark and videos on this page.
For more information, visit www.voicesofmpn.com
The Voices of MPN logo is a registered trademark of Incyte. © 2020, Incyte. MAT-HEM-03012 08/22
Incyte Corporation owns the Voices of MPN trademark and videos on this page.
For more information, visit www.voicesofmpn.com
The Voices of MPN logo is a registered trademark of Incyte. © 2020, Incyte. MAT-HEM-03012 08/22
Polycythemia Vera (PV): REVEALing its symptoms, and real-world research findings
In this video, a myeloproliferative neoplasm (MPN) expert provides helpful answers and resources when it comes to navigating and monitoring PV as well as discussing the latest research in this disease.
Did you know that symptoms of polycythemia vera (PV) can change over time? Changes in symptoms could be a signal of something serious, which is why they are important to monitor.
Clinical research on polycythemia vera (PV) helps us learn more about the disease so we can arm patients with the information they need to make informed decisions about their care. Learn about the REVEAL Clinical Study and the symptoms to look out for: voicesofmpn.com
Sponsored by Incyte.
© 2024, Incyte. MAT-HEM-03842 04/24
Did you know that symptoms of polycythemia vera (PV) can change over time? Changes in symptoms could be a signal of something serious, which is why they are important to monitor.
Clinical research on polycythemia vera (PV) helps us learn more about the disease so we can arm patients with the information they need to make informed decisions about their care. Learn about the REVEAL Clinical Study and the symptoms to look out for: voicesofmpn.com
Sponsored by Incyte.
© 2024, Incyte. MAT-HEM-03842 04/24
Переглядів: 1 269
Відео
MPN Hero Nichole Ard: Connecting Patients, Hope & Clinical Trials
Переглядів 1375 місяців тому
MPN Hero Nichole Ard has a close relationship with the patients in her myeloproliferative neoplasm (MPN) clinical trials. As a Senior Clinical Studies Coordinator at MD Anderson, she knows how vital it is to bring information-and hope-to those entering a clinical trial. Nichole learned the impact of strong patient connections from her mother’s experience as a patient at the same hospital she wo...
MPN Hero Thomas Silver: Raising Funds for Innovative MPN Research
Переглядів 1406 місяців тому
MPN Hero Thomas Silver is Board President of the Cancer Research & Treatment Fund (CRTF). He spearheads the organization’s mission of funding laboratory and clinical research focused on the cause, prevention, treatment, and cure of myeloproliferative neoplasms (MPNs). Under his leadership, the CRTF has funded close to $4 million to the Richard T. Silver, MD Myeloproliferative Neoplasms Center a...
MPN Hero Patrick Buxton: Coordinating Compassionate Patient Care
Переглядів 1676 місяців тому
MPN Hero Patrick Buxton is a Clinical Nurse Coordinator who plays an important role in bridging the gap between doctors and people living with myeloproliferative neoplasms (MPNs). Patrick acts as an intermediary between patients, their resources, and doctors, while helping to coordinate anything needed for their care. He is readily available to help break down the complicated science behind hem...
MPN Hero Dr. Marina Kremyanskaya: Continuing a Caring Tradition
Переглядів 2186 місяців тому
MPN Hero Marina Kremyanskaya became intrigued by myeloproliferative neoplasms (MPNs) and blood cancers during her oncology rotations in medical school. But she was inspired to become a doctor when―time after time―she heard people tell her physician grandfather how grateful they were for his medical services. Both of Dr. Kremyanskaya’s grandparents were physicians in Belarus, then part of the fo...
MPN Hero Dr. Shamim Salman: 31 Years of Compassionate Care
Переглядів 5546 місяців тому
MPN Hero Dr. Shamim Salman has dedicated the past 31 years to helping people living with myeloproliferative neoplasms (MPNs). Dr. Salman is a hematologist-oncologist at Richmond University Medical Center, Staten Island, New York. She is a firm believer that “Every patient needs that little distinctive touch and respect. To interact with the patient first as a human being, one-to-one level, not ...
MPN Hero Marilyn Kay Edwards: Advocating Like a CHAMPN
Переглядів 1956 місяців тому
As a quilt maker and former teacher living with myelofibrosis (MF), MPN Hero Marilyn Kay Edwards believes in the power of stitching together a connection with others. Her MF journey showed her how helpful it can be to talk with another person living with the same rare, chronic blood cancer. After her diagnosis, Marilyn joined a local MF support group. But she was truly inspired by the patient a...
MPN Hero Dr. Andrew Schafer: Guiding Innovative MPN Research
Переглядів 2046 місяців тому
MPN Hero Dr. Andrew Schafer is an influential leader in myeloproliferative neoplasm (MPN) research. He has served in many distinguished roles with top research organizations over his career. Today he is the Director of the Richard T. Silver, MD Myeloproliferative Neoplasm Center at New York-Presbyterian Hospital/Weill Cornell Medical Center and a member of the Board of Directors of the MPN Rese...
MPN Hero Ed Bartholemy: Dedicating 40 Years to Myelofibrosis Care
Переглядів 1926 місяців тому
MPN Hero Ed Bartholemy’s caregiving journey with myelofibrosis (MF) began in 1983 when Nancy, the love of his life, told him she had been diagnosed with MF, a rare, chronic blood cancer. The condition is one of a group of diseases called myeloproliferative neoplasms (MPNs). After 20 years, Nancy’s MF had progressed to the point where Ed quit his job to take care of her full time. By 2021, she a...
Take An Assessment of Your Polycythemia Vera (PV) Symptoms
Переглядів 3,2 тис.9 місяців тому
Take a real-time assessment of your polycythemia vera (PV) symptoms with a leading expert in myeloproliferative neoplasms (MPNs). Watch as an MPN expert walks you through the PV Symptom Assessment Form to help you learn how to assess your symptoms, their severity, and their impact on your quality of life. The PV Symptom Assessment Form will help you communicate your symptoms to your healthcare ...
Identifying and Communicating Your Polycythemia Vera (PV) Symptoms
Переглядів 13 тис.9 місяців тому
In this video, a myeloproliferative neoplasm (MPN) expert helps you recognize the symptoms of polycythemia vera (PV) so you can talk to your healthcare professional about their impact on your daily life. Most parents living with PV have symptoms, but these symptoms may go unrecognized because they are often associated with getting older. In reality, the symptoms may be due to your PV. Remember,...
Honor Your 2023 MPN Hero
Переглядів 56Рік тому
Do you know someone who goes above and beyond to support those with myeloproliferative neoplasms (MPNs)? Nominate them to be a 2023 MPN Hero. The MPN Heroes® Recognition Program honors individuals and organizations that work to improve the lives of people living with MPNs. MPN Heroes come from all walks of life. Whether they are doctors or nurses, patients or caregivers, or advocacy organizatio...
Hiding In Plain Sight
Переглядів 1,2 тис.Рік тому
Find out how symptoms of polycythemia vera (PV), which is part of a group of rare, chronic blood cancers known as myeloproliferative neoplasms (MPNs), may be hiding in plain sight. Common MPN symptoms and their changes may be subtle and hard to assess. That’s why it’s important to monitor your MPN and closely track how you are feeling. Tracking any changes in your health can help ensure that yo...
MPN Hero Dr Raajit Rampal: A Devoted and Caring MPN Researcher
Переглядів 635Рік тому
MPN Hero Dr Raajit Rampal: A Devoted and Caring MPN Researcher
MPN Hero Natasha Johnson: Providing Comfort and Education
Переглядів 258Рік тому
MPN Hero Natasha Johnson: Providing Comfort and Education
MPN Hero Dr. Naveen Pemmaraju: Moving the Field Forward
Переглядів 482Рік тому
MPN Hero Dr. Naveen Pemmaraju: Moving the Field Forward
MPN Hero Jessica Kuhns: Choosing to Stay Positive
Переглядів 638Рік тому
MPN Hero Jessica Kuhns had her life change when she was diagnosed with a myeloproliferative neoplasm Not Otherwise Specified (MPN NOS) in 2016. Jessica met her diagnosis with a new mindset: “I can keep being miserable or I can be positive and being miserable didn’t get me anywhere!” Jessica adapted to life with an MPN and decided to share her thoughts and experiences with others in the MPN comm...
MPN Hero Mayra Andújar: A Guiding Light for People with MPNs
Переглядів 1,2 тис.Рік тому
Mayra D. Andújar Delgado began her mission to learn more about myeloproliferative neoplasms (MPNs) when she was diagnosed with myelofibrosis (MF) in 2016. After her diagnosis, Mayra chose her new purpose: building MPN awareness. Mayra can be heard on the radio, on social media, in support groups, and at local community events educating others about MPNs and raising money for research. Watch to ...
MPN Hero Dr. Ghaith Abu-Zeinah: How Research and Care Intersect
Переглядів 572Рік тому
MPN Hero Dr. Ghaith Abu-Zeinah: How Research and Care Intersect
MPN Hero Justine Hallahan: Helping a Loved One Find Normalcy
Переглядів 369Рік тому
MPN Hero Justine Hallahan: Helping a Loved One Find Normalcy
MPN Hero Dr. Steven Applebaum: Lifting MPN Patients’ Spirits
Переглядів 642Рік тому
MPN Hero Dr. Steven Applebaum: Lifting MPN Patients’ Spirits
MPN HEROES® RECOGNITION PROGRAM: A Decade of Compassion & Commitment
Переглядів 739Рік тому
MPN HEROES® RECOGNITION PROGRAM: A Decade of Compassion & Commitment
Fine Is Not Enough: The Caregiver Side of the Story
Переглядів 1,4 тис.Рік тому
Fine Is Not Enough: The Caregiver Side of the Story
A Decade of Dedication: A Look Back at 10 Years of MPN Heroes
Переглядів 291Рік тому
A Decade of Dedication: A Look Back at 10 Years of MPN Heroes
Speaking Up as an MPN Caregiver: Our Side of the Story
Переглядів 3382 роки тому
Speaking Up as an MPN Caregiver: Our Side of the Story
Speaking Up With Your Healthcare Team: Advocating for Better Care
Переглядів 2092 роки тому
Speaking Up With Your Healthcare Team: Advocating for Better Care
Why Fine Is Not Enough for Louise’s MPN Journey
Переглядів 2,7 тис.2 роки тому
Why Fine Is Not Enough for Louise’s MPN Journey
Speaking Up About Symptoms of Myeloproliferative Neoplasms (MPNs): Taking an Active Role
Переглядів 6042 роки тому
Speaking Up About Symptoms of Myeloproliferative Neoplasms (MPNs): Taking an Active Role
Fine Is Not Enough: Christine’s MPN Story
Переглядів 2,7 тис.2 роки тому
Fine Is Not Enough: Christine’s MPN Story
Me Iam having biopsy 2morrow still don’t know yet but looks like I have PV symptoms
What were the results?
I HOPE YOU ARE WELL NOW, FIRST TIME FINDING OUT ABOUT THIS, I'M TIRED , BONES HURT.
I am the patient of polycythaemia Vera pray for me
Just did. Best of luck to you. ❤
Do you still get itchy?